Our Story

You’re part of our story now. Those of you who have given us words of encouragement, helped us think through the reality of accessibility in our home, donated time and money and materials for our building project, used your words to bring others in; you’re part of our community now. Many of you have met Aidan, some of you have seen closely into our lives, and some of you do not know us at all. Still, you’re part of our story now.

We value each one of you as we are keenly aware that we could not walk this road alone. Indeed, this building project was born from two friends who realized that while they could not help Aidan’s seizures, they could help him safely navigate his home. They are shaping our story, as are you.

If you’re wondering what exactly our story is, you can read my mother heart on my blog. Disability effects the entire family and today I want to give you a gift, a look inside my oldest son’s heart. What is it like to be a teenager and have a brother with a significant disability? Liam has just published an article in a Pediatric Nursing journal that answers that question.  Go here to read more. You are part of Liam’s story now too.


About Heather Bowie

I’m the mother of two wonderful boys and have been married almost 20 years to an amazing Irishman I met in a castle. Our oldest son Liam loves to read and run. Our younger son Aidan loves to drive his power chair and socialize. Aidan has a rare genetic disease (PURA Syndrome) and Epilepsy. This blog was birthed out of the desire to tell our story, and in doing so, appreciate the journey.
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One Response to Our Story

  1. Karen says:

    Liam is an amazing writer too! And an awesome young man. You must be one proud momma bear.

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