Please Join us for an Open House

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Cliff Hanger

Sometime last week I posted on FaceBook that Aidan did something big that captured the essence of why the Bowie House project is life changing.

You can read about it here on my Team Aidan blog.

Also wanted to let you know we will NOT be working on the house this saturday as it’s just gonna be TOO DANG HOT! We’re planning to work Sunday from 12-4. If you would like to join us please let us know.

Also house related (and I’m too hot to actually get up and take a picture) – today’s Facebook status update: You might be a special needs parent if you decide to ride out a heat wave by parking a lawn chair in your kid’s accessible shower and just sitting under cold water for a spell.

Stay cool everyone!!

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Let’s Try Again

It looks like the rain will win this weekend. We’re rescheduling our painting party for July 20th. Plenty of time to plan ahead. The fresh picked strawberries I was going to feed you this weekend will be gone so we’ll have to go with something chocolatey. Please let us know if you can join us.

Also, please set aside Sunday August 18th for our Open House. We’d love to have you celebrate with us and come see how beautiful and accessible our home is.

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Save the Date!



paint party

paint party (Photo credit: mcfcrandall)












This coming Saturday June 29th we’re having a Painting Palooza. That word totally makes sense because we’ll be painting a lot and doing super fun yard work. You don’t want to miss it. The siding on the house is finished and it looks beautiful. The trim needs to be painted and some of the siding needs to be matched as well. We’ve mostly cleaned up the construction stuff outside so we’ll be able to do some landscaping. This is an all hands on deck kind of project cuz’ the more the merrier and many hands make light work and all of that good stuff.




Since Saturday June 29th will be an outside day, if we have to cancel for rain (which I’m sure we won’t have to do) I’ll send out another post friday afternoon and you can check Facebook as well. Please let us know you’re coming so we have enough ice cream for you and bring a friend because Painting Paloozas are fun and this is a community building project.




And when you come on June 29th for our Painting Palooza¬†make sure you sign your name on the tile that will hang in our home. We actually have three tiles full of names of people who have worked on this project. Amazing, really, don’t miss out.




See you Saturday!!

P.S. You may or may not ending up looking like the picture above but you’ll definitely have that much fun!




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Nineteen years ago Garreth moved my clothes from one apartment to another while I was taking final exams. We were just dating and I had a lot of reservations about our relationship. While this moving task was very helpful, I was surprised to see that he didn’t know how to hang up clothes, as in, the hangers were on backwards. The hook was facing out. Who does that? This is far more ridiculous than putting toilet paper on wrong (it should roll from the top). I smiled, expressed my gratitude and made a mental note on the This Relationship Will Never Work list.


This weekend I moved our clothes into our new closet. I love organizing and throwing things away and finding a place for our “stuff.” As I was moving into our new closet, I made a This Has Got To Go pile of Garreth’s clothes. I asked him if he trusted me enough to just let me get rid of them without him looking through them first. He replied with an emphatic no. It makes perfect sense to me that he trusts me with important medical, parenting and financial decisions, but not with his clothes. ¬†I have a heavy hand when it comes to pitching stuff. In the end and after some dramatic lamenting, Garreth only salvaged three shirts from my pile.

We’re a good team, but who could have known? The This Relationship Will Never Work list was long and the risk of marriage is high and the unknowns, good grief, all of the unknowns were so…unknowable.

We’re a good team, Garreth and I. We’ve done drama and trauma and won’t rule out medical marijuana (which is a legitimate treatment for seizures but I mostly said it because it fit so perfectly in that sentence). We’ve been a team that handles doctors and special educators and medical salesman and therapists and legislators and now builders. (Ok, in fairness Garreth has always had builders in his life since he’s a finish guy but this experience is different).

Who could have known that having Aidan would bring so many different and generous and wonderful people into our lives, each with their own story? I continue to be amazed.

Today, Jim and Ben from Ironwood Construction came and installed our cubbies, or The Place Stuff Gets Saved From Being Thrown Out Because It Didn’t Find A Home Elsewhere.

IMG_5685 IMG_5687 Jim first did an actual happy dance that the cubbies fit and Garreth’s design worked. Then he thanked me profusely for the opportunity to help. And that has been the refrain of this project – people want to help, they want to be invited in some way into the lives of others. While I know this in the core of my being to be true, and I know that NOT asking for help deprives others of the opportunity to give, it’s still weird and hard and awkward to ask.

Who could have known that needing a safe bathroom for Aidan could bring about more open, accessible spaces and kind people and personal stories that make me feel so much less alone in this medical journey?

Garreth and I are a good team. Garreth has learned to keep things orderly and I have learned to live with a bit of chaos. It’s what we do; we learn and change and grow together and in the midst of all of this we make room for others.

Perhaps it’s time to throw out the list.

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Construction Fairy

We went away this weekend to spend some time together as a family and to get away from the house. It was cold and rainy and blobby but somehow just right.

We were thrilled to discover upon our return that a Construction Fairy had been here working on the house. Lots of trim was finished and painted and we have power!! It’s so beautiful and exciting. Check it out…..


And if you want to know what Aidan was up to while the Construction Fairy was hard at work…..

Since this entire project started as a bathroom accessibility project, I thought I’d let you know that Aidan used his bathroom for the first time today. It’s been finished for awhile but he hasn’t had the strength to use it until today. Woo Woo!!

Our finish list consists mostly of cutting/painting/installing trim and wainscotting and building two shelves for our remaining closets and hanging some doors. If you have experience and would like to jump in on this action please email us at

There will also be a big painting party for our bedroom, kitchen and outside, date yet to be determined.

Our hearts are full and we’re feeling quite cozy and settled.


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House Update

Liam has been helping me pick curtains, even though we still need to wait for trim to be done. Can you tell how excited he is about this job?IMG_5611The green one is the winner.


The wood floors are in and they look beautiful!

IMG_5622Last night we powered up the pellet stove and had dinner among the power tools and paint brushes in our living room. It was soooooo cozy, although I believe the words Garreth used were “too dang hot in here.”

IMG_5623Last weekend Sue and Sue tore down our bedroom wall (bummer I wasn’t around to smash anything) and built a big closet.
IMG_5629 IMG_5633 IMG_5635 And one little piece of wainscotting has been put up.IMG_5644We’re plodding along with the finish work in bits and pieces while we’re starting to spread out again into our new space.

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